The Down's Syndrome Medical Interest Group
encouraging best-practice medical care for people with Down's Syndrome
DSMIG logo Site Editor Dr Jennifer Dennis
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© DSMIG 2002
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Parent Resources

This site has been written and designed for healthcare professionals. There is no intention to exclude other professionals, carers or parents, but their needs may be more appropriately met by other organisations. Whilst we hope that some of this information will also be useful to parents and carers, we should stress that it is intended to complement, and never replace, direct medical consultation.

Service Provision

Healthcare services and support for people with Down’s syndrome in the UK

Overview of the healthcare services and support currently available for people with Down's syndrome in the UK

Other Organisations

The Down's Syndrome Association
Runs a medical advisory service for parents and carers with which we have close links.

The Down's Heart Group
Provides excellent information and support about heart problems.

These and other organisations provide information about social, developmental, educational and support issues, as well as medical information. The Other Organisations page has a fuller list of relevant groups.

Information Resources this information is 'parent-friendly'

The following is information which we consider particularly 'parent-friendly'. Some of it has been written specifically for parents and carers. Professionals may find it useful to have these resources available.

Whilst we hope that this information will be useful to parents and carers, we should stress that it is intended to complement, and never replace, direct medical consultation.

Ageing and its consequences for people with Down's syndrome Parent Friendly
Article written by Professor Tony Holland for the Down's Syndrome Association newsletter in July 1997

Alzheimer's Society Parent Friendly
Website for The Alzheimer's Society which has a telephone helpline and produces a range of informative leaflets and other literature

Atlanto-axial instability among people with Down's syndrome: Notes for parents and carers Parent Friendly
Text of Down's Syndrome Association Medical Series leaflet No 3. PDF

Blepharitis Parent Friendly
Patient information sheet provided by the Oxford Eye Hospital

British Gymnastics Atlanto-Axial Information Pack Parent Friendly
Information sheet and official screening form for participation by persons with Down's Syndrome in gymnastics and trampolining

Child Development Parent Friendly
Table from the PCHR insert, adapted from Cunningham 1988, outlining the usual development of children with Down's syndrome

Depression in people with learning disability Parent Friendly
Leaflet produced by the Royal College of Psychiatrists

Diabetes and Down's syndrome: Notes for parents and carers Parent Friendly
Text of Down's Syndrome Association Medical Series leaflet No 5. PDF

Down Syndrome and Autistic Spectrum Disorder: A look at what we know Parent Friendly
Paper written for the Down's Syndrome Asociation newsletter by George T Capone from the Kennedy Krieger institute. Baltimore

ENT clinic for children with Down's syndrome Parent Friendly
Details of weekly NHS clinics in Machester for children with Down's syndrome

Eye problems in children with Down's syndrome: Notes for parents and carers Parent Friendly
Text of Down's Syndrome Association Medical Series leaflet No 6. PDF

Eye tests in your own home Parent Friendly
Information on the Outside Clinic's domiciliary eye-care service

Fingerprick thyroid screening test Parent Friendly
Information about how to arrange this type of test

Gastrointestinal problems in children with Down's syndrome Parent Friendly
Article written for parents by Dr Liz Marder for the Down's Syndrome Association newsletter

Growth charts for children with Down's syndrome Parent Friendly
Information about the UK/Republic of Ireland cross sectional growth reference charts 2000

Healthcare services and support for people with Down’s syndrome in the UK Parent Friendly
Information compiled by DSMIG about current provision and availability of services in the UK

Hearing problems in people with Down's syndrome: Notes for parents and carers Parent Friendly
Text of Down's Syndrome Association Medical Series leaflet No 4. PDF

Immunisation. Keypoints Parent Friendly
Quick reference sheet based on DSMIG clinical awareness note

Infective endocarditis prevention Parent Friendly
Parent information notes from the John Radcliffe Hospital. Oxford

Lifestyle Healthcare Ltd Parent Friendly
Website for Lifestyle Healthcare Ltd who produce a wide range of fresh baked gluten free foods with same-day nationwide home delivery

Nasal congestion. Action sheet Parent Friendly
Practical advice written originally for parents but also useful for health care professionals

National Autistic Society Parent Friendly
The highly informative website of the National Autistic Society

Nuk nasal decongester Parent Friendly
Sales information about the nasal congester featured in the nasal congestion action sheet

PCHR insert Parent Friendly
DSMIG's special insert for babies born with Down's syndrome for the parent held personal child health record (PCHR) - The Red Book

Schedule of Health Checks Parent Friendly
Suggested schedule of basic essential childhood health checks taken from the PCHR insert

Testing for Down's syndrome in pregnancy Parent Friendly
"Screening tests for you and your baby" - booklet produced by the UK National Screening Committee (NSC).

The BAHA system: An option for treating hearing loss Parent Friendly
Review article by Mr Patrick Sheehan, Consultant Paediatric otolaryngologist, about using bone anchored hearing aids (BAHA) for people with Down’s syndrome as an alternative to conventional hearing aids or grommets.

Thyroid disorder among people with Down's syndrome: Notes for parents and carers Parent Friendly
Text of Down's Syndrome Association Medical Series leaflet No 1. PDF

Vision in children with Down’s syndrome Parent Friendly
Article written by Dr Maggie Woodhouse based on the work of the Down’s Syndrome Vision Research Unit at the School of Optometry and Vision Sciences. Cardiff University.

Welcome to Holland Parent Friendly
A refreshing insight into the experience of finding that your new baby has Down's syndrome.